Beyond the Bleeds

Today on Beyond the Bleeds, Heather and John welcome Sara Berger, Director and Senior Research Scientist at IBM, to discuss the growing role of artificial intelligence (AI) in healthcare. They explore how patients can use AI to better understand their health and what they should know before relying on these tools. With a background in neuroscience, technology, and ethics, Sara explains how AI works and clears up common misconceptions. She shares examples of how AI already plays a role in everyd

Today on Beyond the Bleeds, Heather and John are joined by Angie Beach, Family Nurse Practitioner at HOC, to explore the importance of primary care for people with bleeding disorders and how comprehensive care goes beyond managing a bleeding disorder alone. Drawing on her years of experience in traditional primary care, Angie shares what she’s learned since joining HOC, including some of the misconceptions she previously had about bleeding disorders and the unique challenges patients can face w

Today on Beyond the Bleeds, Heather and John are joined by Kristin Petrie, HOC Nurse Coordinator, to talk about what people with bleeding disorders should know before their next procedure and why contacting your Hemophilia Treatment Center ahead of time is so important. When most people hear the word “procedure,” they think of major surgery, but for someone with a bleeding disorder, the list can be much broader. Kristin explains why patients should reach out before dental work, colonoscopies, b

Today on Beyond the Bleeds, Heather and John are joined once again by Christopher George and his daughter, Felicity Grajeda, for part two of their conversation exploring how hemophilia shapes a family and the lessons, experiences, and support that can carry from one generation to the next. Christopher shares what he hoped his daughters would learn from watching him live with hemophilia, including perseverance, independence, and not allowing a bleeding disorder to become an excuse or define what

Today on Beyond the Bleeds, Heather and John are joined by Christopher George and his daughter, Felicity Grajeda, for part one of a two-part conversation exploring how hemophilia shapes a family and the different ways it can impact life from childhood through adulthood. Christopher shares what it was like growing up with severe hemophilia, from managing painful bleeds and traveling for care to learning how to self-infuse and eventually taking greater ownership of his treatment. He reflects on h

Today on Beyond the Bleeds, Heather and guest co-host Erica are joined by Angela Blue, Director of Member & Community Relations with the Hemophilia Alliance, for a conversation about the important work happening behind the scenes to support Hemophilia Treatment Centers (HTCs) and the patients they serve. Angela shares the history and mission of the Hemophilia Alliance and explains how the organization works with HTCs across the country. From group purchasing and 340B pharmacy programs to legal