February 16, 202000:32:27

A Zebra, Not a Horse: Rare Patient Voice

Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Wesley Michael 00:50. 1 Market research from Wheaties™ to healthcare 06:34. 2 Diagnosis-based experience brokers 10:11. 3 Health equity? 12:57. 4 Waving a magic wand 17:50. 5 Paying for lived experience 20:03. 5 Focused and growing 22:16. 6 Caregivers sharing their voice 24:37. 6 Reflections 28:13. 7 Joey van Leeuwen “Up” 29:28  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Jack Barrette, David Goldsmith, Andrew Hopper, Jen Horonjeff, Joey van Leeuwen, Thatcher Hussain, Greg Merritt, Grace Cordovano, Regina Holliday, Pat Mastors, Libby Hoy, Geri Lynn Baumblatt, Mary Anne Sterling Links Rare Patient Voice WEGO Health Savvy Coop Patient Family-Centered Care Partners   Related podcasts and blogs https://www.health-hats.com/e-patients-experts-with-lived-experience/ https://www.health-hats.com/teachable-spirit-patient-family-advisors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is th...

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