Episodes

In this powerful episode of In Sickness, Bob Coughlin and Paul Kidwell explore what happens when caregiving ends not gradually, but suddenly - with the death of a spouse. Overnight, caregivers lose not only the person they love, but also the identity, structure, and purpose that defined their daily lives. This transition is profound, disorienting, and rarely discussed openly. Clinical psychologist Barry Jacobs, a nationally recognized expert on family caregiving, joins the conversation to help ...

In honor of Cystic Fibrosis Awareness Month this episode of In Sickness was taped in May and brought together three extraordinary voices whose lives and work intersect one of the most challenging and inspiring frontiers in rare disease: cystic fibrosis. From the biotech lab to the clinic to the family home, this conversation explores CF through the lived experiences of: • Mike Cloonan: CEO of Sionna Therapeutics, advancing a new generation of small molecules in development for CF • Dr. Ahmet ...

Our second annual Henri Termeer Tribute Episode brings together five leaders whose work reflects - and continues to expand - the legacy of one of biotech’s most influential figures. Henri Termeer transformed rare disease drug development by insisting that science, business, and humanity were inseparable. His belief in patient first innovation reshaped an entire industry and continues to guide the people who knew him best. In this episode, host Paul Kidwell convenes a powerful conversation with:...

In this episode of In Sickness. Men and the Culture of Caregiving, we explore one of the most urgent and overlooked challenges in today’s workforce: how employers can better support employees who are also caregivers. With more than half of U.S. caregivers balancing their responsibilities while working full time, companies are facing a cultural and structural reckoning. What does real support look like? What’s missing? And how can leaders build workplaces where caregivers don’t have to choose bet...

Guests: • Dr. Benjamin Lowentritt – Medical Director, Prostate Cancer Program at Chesapeake Urology, Vice President, Physician Services for United Urology Group. • Bob Lane – Prostate cancer survivor and advocate (“Elevator Bob”) Show Notes: This episode of In Sickness. Men and the Culture of Caregiving explores prostate cancer from two sides — the clinical expertise of Dr. Benjamin Lowentritt and the lived experience of survivor Bob Lane. Together, they discuss early signs, diagnosis, treat...

In this episode of In Sickness. Men and the Culture of Caregiviong, we dive deep into the emotional, physical, and logistical challenges faced by caregivers supporting loved ones with early-onset colorectal cancer (EOCRC). With more adults under 50 being diagnosed with this disease, caregivers are often caught off guard — juggling careers, families, and a sudden, life-altering diagnosis. Joining the conversation are an oncologist who is recognized as the foremost authority on this condition, a ...

If you're raising children while caring for aging parents at the same time, you're not alone. In this episode of In Sickness. Men and the Culture of Caregiving, co-hosts Bob Coughlin and Paul Kidwell explore the challenges of being a sandwich caregiver. The three podcast guests share their personal experiences as they explore the emotional, financial, and physical toll of being part of the "Sandwich Generation."

The PBS “Caregiving” documentary has sparked a national conversation that will hopefully lead to change in the many issues facing caregivers. The film features intimate stories from a diverse group of caregivers that highlight the emotional, financial, and logistical tightrope that all of us caregivers walk each day. “Caregiving” shines a light on this essential yet mostly invisible work force and humanizes it by amplifying their emotional narratives and calling attention to burnout, isolation, ...

Rosalynn Carter redefined the role of caregivers in American life, spotlighting their burdens and needs long before they became a national conversation. She founded the Rosalynn Carter Institute in 1987 which continues today as a guiding light for professional and family caregivers. This episode of In Sickness. Men and the Culture of Caregiving explores her deeply personal legacy and how that translated into a lifelong and very public commitment to caregivers and families through her work with T...

The latest episode of In Sickness. Men and the Culture of Caregiving honors Henri Termeer’s legacy as the ultimate patient advocate and caregiver. What better way to offer this tribute than with a group of people who knew him best and considered him a friend and mentor. Deborah Dunsire, John Crowley, David Meeker, John Maraganore, Bob Coughlin and Tamar Thompson reflected on Henri’s legacy and his personal influence on each and our industry. The conversation was rich, lively and filled with anec...

Living with male breast cancer presents unique physical, emotional, and social challenges, many of which stem from the rarity of the condition and the societal stigma surrounding it. There are many misconceptions about this rare form of cancer, but in this episode of In Sickness. Men and the Culture of Caregiving, our two cancer patients – Arvind Natarajan and Steve Del Gardo - share their graphic stories and dispel much of the erroneous information about this condition. One patient even served ...

Compassion fatigue is quite literally, the emotional cost of caring. The physical and emotional exhaustion experienced by caregivers is a common thread in the caregiving experience. It’s a serious condition that affects anyone finding themselves in a helping or caregiving role. This episode of In Sickness had the privilege of speaking with three of the authors – Peter Dudley, Antoinette LeCouteur, Tammy Hurst - of the extraordinary book, Relit. It’s a collection of essays by individuals engaged ...

In this episode of In Sickness, we were the fortunate guests of Takeda Pharmaceuticals as they asked us to take part in their annual celebration of Rare Disease Day by recording our podcast in front of an audience of over 50 energized employees. What a thrill for Bob and I to speak with three of their employees who are also caregivers. Equally delighted to field questions from the audience. Takeda is a company that clearly understands that by supporting caregivers, they can improve patient outco...

Collaboration between caregivers and biopharma companies can lead to innovations that benefit both the patient and their support systems, leading to better health outcomes, more effective therapies, and a higher quality of life for all involved. In this special Rare Disease Day 2025 podcast you will hear the story of Ron and Marla Chapleau and how they have cared for their Aiden who has an ultrarare neurodegenerative disease for over two decades. You will also hear how one company, Vigil Neurosc...

At first glance Sawyer looks like most Golden Retrievers. Floppy ears, kind eyes and a never-stop-wagging tail. But then you step inside the home of Ron and Linda Baxter and see him in action helping Linda who has MS and is in a wheelchair. On any given day Sawyer can aid Linda in retrieving and carrying items, opening and closing doors, providing mobility assistance, and assisting with navigation. Plus, he provides emotional support to Linda as well as Ron who finds him invaluable in reducing t...

All caregivers reach a point where the responsibilities of caregiving bumps heads with the demands of life. It’s usually a combination of physical, emotional and/or mental exhaustion brought on by caring for a loved one over a prolonged period. That’s what happened to podcast guest Kate Washington, who cared for her husband as he endured a series of serious health setbacks. She tried to keep up with the increasing demands of his many illnesses, without adequate support or self-care. Until she co...

For this episode of In Sickness. Men and the Culture of Caregiving we took the podcast on the road. At the invitation of Pfizer, Inc. we recorded our podcast at the company’s New York City headquarters as part of their annual “Patients in Focus” week. Host, Paul Kidwell, had the pleasure of speaking with Pfizer’s VP, Global Patient Advocacy, Emma Andrews and Jason Resendez who is the CEO of the National Alliance for Caregiving. Among the topics discussed were the evolving role of caregivers, the...

Stories of individuals living with and enduring the challenges of any disease never fail to move and inspire others. This is especially true when the illness becomes fatal, and life is shortened. Maria Middleton was an exceptional young girl when she was diagnosed with a rare brain cancer and only 15 when she passed away. I use the word exceptional because during her final months when she was experiencing the brunt of her illness, Maria took the time to touch and move others. She wanted to stren...

It takes courage and compassion to be a police officer. The same is true for a caregiver. Just ask Clifton Huffmaster whose day job finds him working as a detective in the Special Victims Unit with the Concord Police Department in Concord, California. This takes courage. He’s also a graduate from the Theological Union at Berkeley College from which he holds a PhD. Maybe that’s where compassion comes from. When Clifton’s wife Lauren was diagnosed with metastatic breast cancer his world turned ups...

For all caregivers, their lives are divided into two parts. Before diagnosis and After Diagnosis. This is particularly true for those who must manage one of the more insidious illnesses, Alzheimer’s Disease, where the changes taking place before the diagnosis and once the disease has become fully onset, are significant for the patient and care partner alike. Marty Schreiber is the former Governor of Wisconsin, author of, My Two Elaines. Learning, Coping and Surviving as an Alzheimer’s Caregiver....

For Josh Argall, life couldn’t get much better. He was a 25-year-old first-time father of, Devin, who quickly became the center of Josh’s universe. Josh’s world was rocked when he and Devin’s mother noticed that their three-year-old son was somewhat slow in reaching some of the physical milestones like crawling and walking that are typically associated with children his age. In the months following, Josh’s world changed dramatically as Devin went through numerous doctor visits and misdiagnoses. ...

When you have a child diagnosed with any illness, you can only hope your efforts don’t require a lifetime commitment. The hope is for a short-lived illness that comes with a diagnosis followed by a cure. For former MassBio President, Bob Coughlin, he has lived through the in utero cystic fibrosis diagnosis of his son, Bobby, the physical challenges of caring for a young CF patient, and the constant involvement as a CF patient advocate raising awareness and all-important research money. Also, a t...

At 17, Mason Smith was your typical teenager and living a life filled with school, sports, lots of hanging out with friends and more growing up. That all came to an abrupt stop when his mother was diagnosed with a fatal and ultra-rare neurodegenerative disease, adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP). This young man who was just sprouting his wings took a harsh turn into adulthood as part of his Mom’s primary care team when she began to exhibit behaviors t...

If you’re looking for a fair fight, don’t pick one with cancer. Odds are that cancer rarely loses and its adversary won’t have a puncher’s chance of bringing on defeat. Anyone confronted with caring for someone with a cancer diagnosis typically has no shortage of personal will, but not necessarily successful in finding a way to beat cancer. Just ask Miguel Barron who supported his wife in her two-year ordeal living with metastatic breast cancer, providing constant love, compassion, and dedicatio...