Episodes

Lyndall Grace, our host for this episode of the CF Together Podcast, interviews Taylah about Body Image. Take a listen as they talk about their body image battles through the years - from school kids through to adulthood, now on modulators. Following Lyndall and Taylah, Raphael catches up with Julianna, a dietitian specialising in body image. Julianna has been working in CF over the past 15 years and offers a wealth of knowledge in her chat with Raph.

In this heartfelt episode, host Lyndall Grace speaks with Mandy, early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt deeply overwhelmed then she and her partner focused on working together as a team, drawing on the strength of their family unit to find creative, consistent ways to care for Rory. Mandy reflects on how her ...

In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community. First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences with IVF, the challenges and triumphs of parenting with CF, and the unexpected joy of conceiving her second child naturally after starting Trikafta. Then we hand the mic to Raphael Recht, who explores ...

In this episode, we tackle the tough, personal, and often uncomfortable questions that don’t always get talked about when we visit our cystic fibrosis (CF) team—those questions that many are thinking but may not know how to bring up. Should I wear protection during sex? Why do I keep getting thrush? Is vaping really that risky for someone with CF? What’s with the smelly farts? Can I kiss someone who has a cold? We’re joined by Kate, a CF Clinical Nurse Consultant, who gives expert, honest ...

Finding your voice to self-advocate can feel overwhelming at times. Gen, Gloria, and Kelly share valuable insights to help navigate the first steps in confidently asking for what you need.

In this episode Stephanie Quattromani, Executive Manager, Services, Care and Research at CF Together catches up with Alison Archibald from Victorian Clinical Genetics Services, and Belinda McClaren from the Murdoch Children's Research Institute (MCRI) to talk about carrier testing and carrier screening. This episode covers the difference between carrier testing and carrier screening, why people may consider each option, and how you can access these services. Links mentioned throughout the episod...

In our first episode of The CF Together Podcast, Raphael catches up with James and Davie to talk about their path to fatherhood and living with cystic fibrosis (CF). This episode will make you laugh, squirm and maybe even cry. It's a candid and raw discussion about the IVF journey that led to the magical moment when they both became Dads. The CF Together Podcast also features expert information at the end of each show. In this episode Stephanie Quattromani, Executive Manager, Services, Care and ...