Episodes

When someone dies by suicide, their story doesn’t end. It changes shape and lives on in the people who loved them. In this series finale, Joseph talks about how grief after suicide is different, what survivors wish others understood, and how sharing stories can help people heal.

This conversation isn’t about being for or against guns. It’s about lowering risk during the moments when someone isn’t fully themselves. Joseph explains why access matters in a crisis, which steps are practical and temporary, and how to talk about safety in a way that shows love rather than suspicion.

“Can’t complain.” Money worries, health problems, caregiving and job insecurity rarely arrive as one big blow. They build up quietly. Joseph looks at how shame keeps people silent, and how long-term stress wears down hope slowly and then all at once.

Many people who are struggling aren’t in a clinical crisis. They’re exhausted. Joseph talks about compassion fatigue, the constant stream of stress and bad news, and why feeling “done” often sounds ordinary long before it sounds alarming.

We like to believe we’d see it coming. Sometimes the first sign is the sound of sirens. Joseph starts with the recent loss of a high school senior in a quiet neighborhood. He then looks at why “I never would have thought” is one of the most common things people say after a suicide, and why being close to someone doesn’t mean we’d know they were struggling.

What does it mean to finally be seen — as a woman, as a mother, after decades of being told you couldn't possibly have this disease? And what does it mean for a child growing up now, in a community where a scraped knee doesn't have to mean fear? In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B — including one mother whose full, twenty-five-ye...

What does it take to uproot your life for a weekend — leave work, leave school, leave the routines that hold a family together — and fly to Las Vegas for nothing but community and education? This year, over eleven hundred people did exactly that. In Part 1 of this three-part series, host Kai Sorensen walks the halls of the Coalition for Hemophilia B's 2026 Symposium, capturing the reunions, the quiet courage, and the everyday advocates who make this weekend feel less like a conference and more l...

New York State Senator Joseph P. Addabbo, Jr. has been one of the most consistent allies our community has in Albany. He sits down with Kai to talk about how one constituent meeting changed the way he sees bleeding disorders legislation, why step therapy reform matters, what his Java with Joe coffee meetings are really like, and the message of hope he carries into a tense political moment.

In this practical and reassuring episode of Boundless B, Kai M Sorensen speaks with Dr. Douglas Hutchinson, a practicing dentist and father of a son with severe hemophilia B, about a topic many families quietly worry about: dental care. Together, they unpack why brushing, flossing, and dental visits can feel intimidating in the bleeding disorders community — and why avoiding them can create bigger problems down the road. Dr. Hutchinson explains that bleeding gums often point to inflammation, not...

What if the biggest barrier to care isn’t access — but the words we use? In this powerful and deeply personal conversation, AMBER FEDERIZO APRN, DNP shares how language, stigma, and outdated clinical assumptions continue to shape — and often limit — care for women and girls with bleeding disorders. Drawing from both her clinical expertise and a life-threatening personal experience, Dr. Federizo challenges long-standing terminology like “carrier,” exposes how bias shows up in emergency care, and ...

In Part 2 of this powerful two-part series, Dana Kuhn’s story moves from private devastation to public accountability. After losing his wife because Dana unknowingly contracted HIV through contaminated blood products, Dana began uncovering internal documents that suggested warnings about blood safety existed earlier than families were ever told. What began as counseling work inside a hospital quietly transformed into an investigation. Through Freedom of Information Act requests, stacks of CDC me...

What happens when life-saving treatment becomes life-altering — and the systems meant to protect families move too slowly to prevent harm? In Part 1 of this powerful two-part series, Dana Kuhn shares the deeply personal story that would shape a lifetime of advocacy. Set against the early years of the AIDS epidemic, this episode traces Dana’s journey from a newly ordained minister and young father with mild hemophilia to a caregiver navigating fear, stigma, and devastating loss. After a routine i...

Music heals.

In this moving episode of Boundless B: The Hemophilia B Podcast, Adam Smith and Shelby Smoak share the behind-the-scenes story of recording ‘We Are the World’ in Nashville, TN. Through their reflections, listeners will hear how music brought the community together, empowering voices and fostering connection. Listeners will hear reflections on the recording experience, the importance of music in fostering connection, and a special excerpt from the song itself.

In this moving conversation, Dr. Mosi Williams shares his lived experience with Severe Hemophilia A and the mental health journey that shaped his path as a clinical social worker and community advocate. From navigating early trauma and grief during the HIV/AIDS crisis to helping others find strength in vulnerability, Mosi brings deep wisdom to the emotional side of living with a bleeding disorder. Listeners will walk away with a renewed understanding of resilience, connection, and the importance...

What if the strongest form of advocacy wasn’t a protest—but a shared story around a table? In this special Boundless B conversation, we explore how showing up, connecting, and supporting one another can be the most powerful act of all. Dr. Whitley Grant-Goodman, licensed clinical mental health counselor and addiction specialist, joins us to reflect on her recent session at the Coalition for Hemophilia B’s Meetings on the Road event in Charlotte, NC. Together with host Kai M Sorensen, they explor...

The holidays can be joyful, but for families living with Hemophilia B, they can also bring heightened stress—emotionally, physically, and logistically. In this powerful episode, Dr. Shaleen Kendrick, creator of the Neuro-Relational Integration™ model, joins Kai to offer science-backed tools to help regulate the nervous system during times of overwhelm. Whether it's managing expectations, sensory overload, or navigating emergency preparedness, this conversation offers actionable strategies to hel...

What do you do when your baby is born covered in bruises, and no one has answers? In this episode, Mandy Aberegg shares her powerful journey as a mother of two children with Hemophilia B—and how she turned fear into fierce advocacy. Her story will leave you inspired, informed, and ready to take that next brave step forward.

When Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change. In this powerful episode, Kate shares how that loss catalyzed the creation of the Bleeding Disorders Substance Use and Mental Health Access Coalition (BDSUMHAC). We explore the stigma, fear, and policy gaps that keep people with bleeding disorders from receiving the care they deserve—and the inspiring ways a...

How do you recharge your mental battery before burnout hits? In the final episode of this three-part series, Latisha B. Russell focuses on sustainability—the small habits that keep us grounded and the courage it takes to reach out for help. Drawing parallels between phone batteries and mental health, Latisha reminds us that consistent care—not crisis response—is what keeps us strong.

How can one small, genuine question change someone’s entire day? In part two, Latisha B. Russell explores the power of simple, culturally neutral connections—both at work and in our personal lives. From authentic check-ins to curiosity-driven listening, this episode highlights how compassion in action builds stronger communities, one small gesture at a time.

What does it really mean to “put your own oxygen mask on first”? In this opening episode of the World Mental Health Day series, emotional well-being coach Latisha B. Russell invites us to slow down and reconnect—with ourselves. Through powerful analogies and simple daily practices, Latisha explains why self-connection isn’t selfish, it’s essential. When we pause with purpose, we create space for empathy, balance, and resilience—both in our personal lives and across our community.

What does it mean to save a life—not just with medication, but with dignity, opportunity, and hope? In this deeply moving episode, we sit down with Cindy Komar, Executive Director, and Debbie de la Riva, Ambassador Program Coordinator at Save One Life, to explore how one sponsorship, one connection, and one act of compassion at a time is transforming lives for people with bleeding disorders in underserved countries. From scholarships and business grants to life-saving medication and emotional he...

What happens when the systems we rely on fail in an emergency? In this powerful episode, host Kai M Sorensen speaks with Darlene Shelton, founder of Danny’s Dose, about the terrifying realization that EMS responders are often not permitted to administer life-saving medications carried by individuals with rare diseases—including those with Hemophilia B. What began as a grandmother’s attempt to protect her grandson Danny after his diagnosis has grown into a national movement for emergency protocol...