Episodes

Bryce on travelling with CF Travelling with CF can sometimes feel daunting. There's a lot to think about. But Bryce, a teacher from NSW who lives with CF, says the effort is more than worth it. In this episode, Bryce chats about travelling with CF, the tips and tricks that worked for them and their advice to anyone wanting to travel. Transcript Coming soon. This podcast was published in October 2022. If you would like to share your story, please contact us at projects@cfcc.org.au. We’d love to h...

CFPhysio and navigating fatherhood part 2 This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio This is the second episode to navigating fatherhood with CF. Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is hone...

CFPhysio and navigating fatherhood part 1 This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is honest in sharing his experiences learning how to prioritise the ...

Kate on parenting and CF In this episode of the CFStrong podcast, we speak with Kate about navigating CF and parenting. We discuss Kate's journey to becoming a parent, how she manages her health while parenting and how she talks with her son about CF and what the future looks like. ”Now as he's a teenager, it's easy. But when he was little, I really focused massively on my health as well as parenting... you look at people that have got multiple kids, child three or four just fits in, right. So t...

Bryce on work, family and CF In this episode of the CFStrong podcast, we speak with Bryce, a teacher from NSW, about work and family and how he manages both while also taking care of his health. ”A lot of people who are coming in to having a family think that they need to be on top of it all the time, you just, you can't be and it's hard. And it's tough. And it's not going to be easy all the time. There's certain things you can do to make it easier. But sometimes I'm just not and it's, something...

CF and the NDIS In this episode of the CFStrong podcast we speak with Ben from Trusted Care, a subsidiary of CF Queensland, about the NDIS. We explore what the NDIS is, how people with CF are accessing support from the NDIS and what advice Ben has for anyone thinking about applying for the NDIS. ”It's about educating people in the NDIS. That's real advocacy, helping people become educated and better equipped to understand and learn the way to speak about the NDIS, the way to approach the NDIA, t...

CFPhysio on exploring the huff This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio. Sit down with experts in their field, Dr Brenda Button, Kathleen Hall, and Esta Tannenbaum, physiotherapists who have worked with individuals with CF across the lifespan, and learn more about huffing. This technique is integral to all airway clearance in CF. Understanding more about what is being achieved in the airways when performing this technique will empower you to develop a huf...

Scott on fatherhood and CF In this episode of the CFStrong podcast, we speak with Scott about being a dad, his journey to fatherhood and his advice for others thinking about having a family of their own. This podcast was published in June 2022. If you would like to share your story, please contact us at admin@cfcc.org.au. We’d love to hear from you and so would our listeners.

Alex on parenting and CF This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Dive into the second chapter to “It Takes a Village” with Alex and Dr Benda Button. Alex once again shares with sensational vulnerability, courage and honesty her journey being a mum. Alex has amazing insight, and she has learnt over time, and with reflection the importance of prioritising her oxygen first when parenting. ”You can't compare yourself to other parents who don't live with a c...

James on staying active and sharing his CF story In this episode of the CFStrong podcast we speak with James about growing up with four brothers, keeping active and playing sport and what helped him to open up about and share his CF story with his teammates. "I kept it a secret, you know, as much as I could from pretty well most people... But then when I got towards 27 I started slowing down a bit more again. And that's when I started to open up... It actually worked out pretty well. And I do pr...

Alex on pregnancy and parenthood This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Take a journey with Alex, as she shares her experience with Dr Brenda Button of planning, preparing and embarking on pregnancy with CF. Alex is a talented photographer, partner, mother, and strong advocate for her healthcare. This podcast provides insight on so many aspects of living with CF, with the key message: rally your team, create your village, and live the life you maybe ne...

Amanda on why asking for help makes you strong In this episode of the CFStrong podcast we hear from Amanda about her experience living with CF. Amanda discusses what she is most proud of, the importance of the CF community and the challenges of losing friends with CF. She talks about the value of being ok with not being ok and why you should ask for help when you need it. This is the second episode of our two-episode chat with Amanda. “…the help is there. But you've got to ask, and it's not—you ...

Amanda on kicking goals and the value of strong support networks: part one In this episode of the CFStrong podcast we hear from Amanda about her experience growing up with CF, the importance of her support network and—literally—kicking goals. Amanda discusses playing contact sport, how she dealt with her health taking her away from the sport she loved and her decision to get back on the football field. This is the first episode of our two-episode chat with Amanda. “…as I was growing up, I kind o...

This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. In this episode, Jen Hauser, a physiotherapist with nearly twenty years experience, speaks with Meg about her physiotherapy routine and the value of building positive relationships with your healthcare team. Meg, a young woman with CF, shares her insights on working together with her healthcare team for better outcomes. Meg also talks about how she has learnt over time to modify her daily treatments to get the bes...

Alex on switching gears and managing CF In this episode of the CFStrong podcast we hear from Alex who for a long time let his treatment take a backseat. He discusses how he used to approach his health care, what helped him get to a point where he could take his treatment seriously and how he approached switching gears and managing CF. "I also wouldn't change a lot of the decisions, even the bad ones, that I've made, because they've helped me learn, and they've helped sort of teach me what is imp...

This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. In this episode, Jen Hauser, a physiotherapist with nearly twenty years experience, speaks with Luke about how he manages his CF and physiotherapy and how he stays motivated to keep active. Luke, a young man with CF, shares some of his journey with developing a routine for life, including aspects of lung hygiene and exercise. Luke talks about his strategies for motivating himself and staying on track, especially w...

Mike on strength of body and mind In this episode of the CFStrong Podcast we speak with Mike about how exercise and bodybuilding have helped him both physically and mentally. "For me, it became a passion. After only six months to a year of doing it, when I was about 16 years old, it became almost an obsession, I would say. And the benefits were just so massive that it was, it was so easy to maintain, and to keep doing it, you know. When I started training, when I was 15, I weighed 44 kilos. And ...

This podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances

This podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances. Sam talks openly about how he finds it difficult to raise his illness with friends, the responses he has received, and how he’s coming to terms with who he is. Sam is passionate about sharing his journey to help those who are in a similar situation to become more confident with accepting themselves as they are. With his parents suppo...

This podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances. Sam talks openly about how he finds it difficult to raise his illness with friends, the responses he has received, and how he’s coming to terms with who he is.

Living Remotely In this podcast, Dan talks about the benefits and challenges of living remotely with CF. He chats about his adventurous life with his good friend Shaun. Dan talks about the logistics of managing his health from growing up in regional Victoria, then moving to the Northern Territory after completing his studies, over to Ireland and briefly touching down in Nepal. Dan's journeys are interesting and he shares the comforting knowledge that careful planning and patient care from health...

CFStrong: Dan

In this podcast, Kristy shares her experience of going from consistently good health for most of her life, to being on and off the transplant list. Kristy talks about her love for working and keeping incredibly busy, from running restaurants, working as a youth worker and to now studying social sciences. Kristy also shares her story on becoming a mum and the challenges and blessings of raising a child with a chronic illness. Kristy is full of gratitude, warmth and wonderful energy. We hope you e...

In this podcast, Lauren shares her experience of life with cystic fibrosis. Although still young, she has had an amazing career progression from working in law, to film production, then a Department of Foreign Affairs and Trade (DFAT) government role that took her overseas, to today as she starts her own business. While she was working for DFAT, she got a posting to Port Vila in Vanuatu in the South Pacific, and she talks about the logistics, challenges and positives of her time living overseas ...