Powerful Patient

Joyce Graff speaks with the originators of a new product, Caption Companion. This device captures the spoken words around it, and transcribes them faithfully using Automated Speech Recognition (ASR) software which is amazingly accurate. It is helpful to individuals who are hearing impaired, and also to general groups of people, providing "public" captioning to everyone in the room, whether of not they have trouble hearing -- keeping everyone in the conversation.

Catherine Anderson This episode is also available as a video at https://youtu.be/hlBIIh-MGpI Catherine Anderson was diagnosed with idiopathic subglottic stenosis. She has not only done research for her own case, she created a support group on Facebook for others with SGS of any origin: injury during surgery, injury during intubation for COVID or other emergency conditions, or “idiopathic” as in her case — cause unknown. Where is the trachea? This image shows the relative positions of the esop

Ina Pinkney, the Breakfast Queen of Chicago, joins Joyce Graff to speak about Post Polio Syndrome, which can impact someone who survived polio. It tends to occur 20 or more years after the initial illness. In the Western world, polio survivors are mainly seniors today, but in the rest of the world, where polio is more recently eliminated, there are many survivors of polio who are younger and are just entering the danger zone. Many survivors and physicians are working together to learn about this

Talking with Joyce Graff Harvey Bravman of Brookline HUB In Depth Joyce Graff, Founder of Powerful Patient, was featured on an episode of Brookline HUB In Depth. Brookline HUB is a media outlet local to Joyce’s home community of Brookline, Massachusetts. Host Harvey Bravman focuses on her work with Powerful Patient, empowering people to partner with their health care providers and manage their own health. Joyce tells the story of the founding of the VHL Alliance. She and others worked to cre

Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.

Positional Orthostatic Tachycardia Syndrome (POTS) is a multi-system conditions that are very tricky to diagnose. It may be an auto-immune disorder.