Powerful Patient

Empowering people with complex medical conditions and disabilities.

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Recent Episodes

Celebrating Rare Disease Day

Posted February 20, 201400:32:55

Dr. Ilene Sussman speaks with Mike and Joyce about the celebration of Rare Disease Day being co-sponsored by the VHL Alliance and MassBio on February...

Flu Near You

Posted February 19, 201400:29:20

YOU can help researchers track and flu virus and improve flu prevention.

Joyce speaks with Rumi Chunara of the project Flu Near You, which tracks...

Passing it Forward – DIPG

Posted February 6, 201400:33:06

Mike and Joyce speak with Louise Bunting about her experience, about DIPG, and about turning her grief and that of her family and friends into positive...