Episodes

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives. Both Tim and Becky have worked to bui...

Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon. With decades of progress with targeted treatments, CML patients are now given more hope of achieving deep remission and potentially discontinuing medication. A cure for an incurable disease may now be in sight. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our...

Unase a nuestro anfitrión, Javier Macias, y nuestra invitada Susan Moscoso, BSN, RN, BMT-CN, una de las enfermeras orientadoras del Centro de Apoyo para Ensayos Clínicos de La Sociedad de Lucha contra la Leucemia y el Linfoma. Explican importancia de los ensayos clínicos, los beneficios de participar en ensayos clínicos y cómo los enfermeros orientadores ayudan a los pacientes encontrar ensayos clínicos apropiados mientras los apoyan durante el proceso. DESCARGAR TRANSCRIPCIÓN Mencionado en es...

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments. While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give thems...

Heidi MacAlpine Join us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol. This episode will help patients, caregivers and healthcare professionals understand the benefits of adding wellness practices to conventional therapies, such as yoga, ...

Tim Cooper Join us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior. After multiple treatments, including chemotherapy and stem cell transplantation, Tim is doing well and enjoying life. He finds that sharing his story is therapeutic and encourages other patients to ke...

Laurie Adami Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission. Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one that finally worked was approved for her disease. Her story of resilience and determination to stay alive for her young son is the ins...

Lee Greenberger, PhD Join us as we speak to Dr. Lee Greenberger, the Senior Vice President and Chief Scientific Officer of The Leukemia & Lymphoma Society. In this episode, Dr. Greenberger gives us updates on the COVID-19 pandemic. As the virus has continued to evolve at a rapid pace, we discuss how the national approach to this pandemic has changed and what measures we can use to stay safe. Patients and their families will be given updated and accurate information to stay safe as we all move ...

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that the site also afforded the opportunity for family members and friends to engage and give them support. Tia then shares the mission of Ca...

John Falco Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then later diagnosed with acute myeloid leukemia (AML) in his brain in 2021. This incredibly rare second diagnosis changed the course of John’s treatment and thankfully led to him achieving a complete remission after a stem cell transplant. As a young adult professional, John was at the heart of his career at the time of his diagnosis and felt the pressure to return to normal, which ...

Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about the latest treatment advances for myelodysplastic syndromes (MDS). In honor of MDS Awareness Day on October 25th, the doctors discuss how MDS develops, why genetic mutations matter when choosing a treatment course, and how stem cell transplantation, targeted treatments and cellular therapies bring hope to MDS patients and their families. DOWNLOAD TRANSCRIPT CLICK HERE to participate in o...

Bruce Rieder Don’t miss this story of a patient who refuses to let cancer define his life. Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected with the LLS Clinical Trial Support Center, sought out a second opinion and ended up with a specialist in a nearby cancer center. He received a stem cell transplant in Febr...

Bryon Daily Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of LLS Staff, will be interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will give the listener the feel that they are right in the middle of the action. In the first episode, Bryon Daily, the National Community Outreach Manager for LLS’ Myeloma Link Program, explored one of the ...

Matthew Davids, MD Please join us as we speak to Dr. Matthew Davids of Dana-Farber Cancer Institute. In this episode, Dr. Davids discusses current treatments for chronic lymphocytic leukemia (CLL) and the exciting possibilities for the future using immunotherapies. Dr. Davids shares how the goal of treatment is long term remission and quality of life. Since 2010, BTK Inhibitors, CAR T-cell therapy and other treatments have come on the market and have increased the possibilities for patients to...

Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed survivorship planning, imposter syndrome, and developing a growth mindset. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts. Be sure to tune into the previous episode from CancerCon, where we hear from young adult cancer...

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them. We found the responses to this question can vary from patient to patient and even change once treatment ends. We hope that through their words, listeners will find a sense of connection and evaluate their own meaning of survivorship. Be sure to stay tuned for t...

Please join us as we speak to Dr. Shernan Holtan and guest co-host from LLS, Christina Neilsen. In this episode, Dr. Holtan discusses stem cell transplants; how they work, the different types of transplants, and the side effects, including graft-vs-host disease (GVHD). Dr. Holtan shares exciting new research on reducing GVHD and provides blood cancer patients with hope as transplantations continue to improve and bring about potential cures. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our ...

John P. Leonard, MD Please join us as we speak to Dr. John Leonard of Weill Cornell Medicine. In this episode, Dr. Leonard discusses the broad array of immunotherapy treatments, in which a patient’s own immune system is stimulated to fight cancer cells. From CAR T-cell therapy to monoclonal antibodies to new bispecific therapies, Dr. Leonard shares how these immunotherapies are changing the landscape of cancer treatment and giving hope to more blood cancer patients. DOWNLOAD TRANSCRIPT CLICK ...

Únase a nosotros mientras hablamos con Ana Zermeño y Ana Victoria Portillo sobre asistencia financiera y recursos para pacientes que enfrentan un diagnóstico de cáncer de la sangre. Ana Zermeño es trabajadora social del Centro Médico de la Universidad de California en San Francisco. Ana Victoria Portillo, también trabajadora social, es Especialista en Información en La Sociedad de Lucha contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés). Ambos ayudan a los pacientes y sus familias a...

Daniel Pollyea, MD, MS Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine. In this episode, Dr. Pollyea discusses the group of diseases that make up Myelodysplastic Syndromes (MDS) and how their variability leads to different treatments and prognoses, from active monitoring to chemotherapy and/or stem cell transplantation. He shares his excitement about new treatment advances and is looking forward to an era of innovative targeted treatments for ...

Howard Willens Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and the present, while living their lives to the fullest. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Chr...

Benjamin Lampson, MD, PhD Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the development and utilization of CAR T-cell therapy for MCL. Approved in July of 2020 for relapsed or refractory MCL, CAR T-cell therapy has shown incredible promise and is already giving hope to patients and doctors as a potential cure. Be sure to tune into Part 1, where Dr. Lampson discu...

Benjamin Lampson, MD, PhD Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the latest treatment advances for MCL. With more treatments available than just a few years ago, Dr. Lampson shares how his conversations with his patients have changed, providing more hope after a diagnosis of MCL. Be sure to tune into Part 2 launching on May 23, 2022, where Dr. Lampson wil...

Damion Davis Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that therapy would provide for him and his family. In honor of Mental Health Awareness Month in May, we share his story of resilience, highlighting the import...