Episodes
29
Jan. 15, 2018
#29: Rituximab Infusion
Welcome to Episode 29 of the What’s The Matter With Me? Podcast: “Rituximab Infusion” In this episode we’ll take a look at: no-tie shoelaces last week’s rituximab infusion (my multiple sclerosis medication) Hoppin Hot Sauce‘s inclusion in the Winter Fancy Food Show Pre-history throwback pilot Episode 3, in which I have a hard time asking for help NOTE: Most of the early episodes are offline for maintenance, and I’ll put them back as soon as I can get around to it. Thanks for understanding. ...
28
Jan. 3, 2018
#28: New Year
It’s a New Year and time to move forward Last episode of What’s The Matter With Me? Episode 27 wasn’t very focused and I could have explained myself and foregrounded what is going on with my Multiple Sclerosis disability more effectively. The title of this podcast is What’s The Matter With Me? after all. I resolve to run things a little more by-the-book this year. For this episode, at least. Cafe Oto Crowd outside Cafe Oto in Dalston, East London Last episode, I reviewed Marshall Allen’s Volc...
28
Jan. 3, 2018
#28: New Year
It’s a New Year and time to move forward Last episode of What’s The Matter With Me? Episode 27 wasn’t very focused and I could have explained myself and foregrounded what is going on with my Multiple Sclerosis disability more effectively. The title of this podcast is What’s The Matter With Me? after all. I resolve to run things a little more by-the-book this year. For this episode, at least. Cafe Oto Crowd outside Cafe Oto in Dalston, East London Last episode, I reviewed Marshall Allen’s Volc...
28
Jan. 3, 2018
#28: New Year
It’s a New Year and time to move forward Last episode of What’s The Matter With Me? Episode 27 wasn’t very focused and I could have explained myself and foregrounded what is going on with my Multiple Sclerosis disability more effectively. The title of this podcast is What’s The Matter With Me? after all. I resolve to run things a little more by-the-book this year. For this episode, at least. Cafe Oto Crowd outside Cafe Oto in Dalston, East London Last episode, I reviewed Marshall Allen’s Volc...
27
Dec. 26, 2017
#27: Throwback Episode “Help”
Episode 27 “New Blog / Throwback Episode 4: Help” As my limitations from multiple sclerosis increase, I’ve had to get comfortable asking for assistance. Asking for and accepting help is one of the secrets of effective people. Or so I’m told. Winter rolls on. I continue to produce content and work on the site daily. Being with family and experiencing multiple sclerosis or disability can be difficult to manage, and pressure only increases during the holiday. Papa’s Got A Brand New Blog I’ve ad...
26
Dec. 17, 2017
#26: Throwback Episode 5 “MRI”
Slogging through the holiday with MS and trigeminal neuralgia pain I fell and ripped out the belt loop from my carpenter pants Throwback to the pilot: Episode 5 when I had an MRI reaction and a boil on my butt – gross Mary from Friends NYC @friendsnyc picked out this sweater
25
Dec. 5, 2017
#25: Keep Going
I‘ll Never Give Up – Look at my window: I’m alive. I didn’t quit doing this thing that is very scary – to share. I have built my disability consciousness and that will continue. I am going to bring new voices to the podcast in 2018. I figured out what I’m going to do about the handicap space at my children’s School- get help from the administration. I am going to release the email only episodes to get ready for the New Year. The photograph is of an accessible cutting board I recently began...
24
Nov. 22, 2017
#24: “Hole”
What’s The Matter With Me? Podcast Episode 24: Hole Recovering from Multiple Sclerosis and moving my small hot sauce business forward “Hole in the wall”, A fall story I tripped over myself in my bedroom and punched a hole in the wall. It was klutzy and embarrassing, but at least the wall took the worst of it and I came through okay. I’m in recovery My Nurse Practitioner told me I was in recovery from MS and that changed my perspective. I have been in a defensive stance, and I can begin to ...
23
Nov. 22, 2017
#23: Roll With The Punches
Episode 23 Thank you for tuning in to the What’s The Matter With Me? Podcast. In Episode 23 Roll With The Punches I fall asleep at the KFJC meeting, hang in the yard, experience intense Trigeminal neuralgia pain, and read an old song lyric I wrote called “Roll With The Punches.” Fatigue I fell asleep at the KFJC weekly station meeting and that was distressing. I woke up and everyone was looking at me. It shook me and later in the evening I fell off the station couch awkwardly. I go to KFJC to...
22
Nov. 8, 2017
#22: Gallons, Untied Shoes, Commes des garcons/Rei Kawakubo, Surplus Store Shopping
Welcome to What’s The Matter With Me? Podcast Episode 22, “Gallons, Untied Shoes, Commes des garcons/Rei Kawakubo, Surplus Store Shopping” In this episode: New hot sauce size — Disaster: Shoes came untied — Changes in disability is like wearing Rei Kawakubo/Commes des garcons clothes — A good time shopping at the surplus store New hot sauce size Hoppin Hot Sauce now comes in gallons, for my foodservice clients. It’s so they can re-use bottles. Disaster: Shoes came untied My shoes came untie...
21
Nov. 2, 2017
#21: Complicated feelings about Federal Disability, Falling, Nasty Tracksuit
Welcome to What’s The Matter With Me? Episode 21, “Complicated feelings about Federal Disability, Falling, Nasty Tracksuit” In this episode: Qualifying for Federal Disability Pt. II — Two Falls, One Painful, and The Other With Wine — Going Shopping and buying a tracksuit with filthy pictures on it that my wife asked me not to wear around her or our children
20
Oct. 25, 2017
#20: Disabled dad struggling to build my business and my life
Welcome to What’s The Matter With Me? Episode 20, “Disabled dad struggling to build my business and my life” In this episode: I Fell — Sweating — Boathouse Hike — Secretary of State — Hot Sauce Business — Disability Hand rails are useful for people with MS and other disabilities. I took this photo outside my dentist’s office in Santa Clara, California.
19
Oct. 18, 2017
#19: Creating music brings peace and calm to struggle and volatility
Welcome to What’s The Matter With Me? Episode 19 Wild Fires Wildfires are burning close to my family’s home in Santa Rosa. The hill behind the house is Annadel State Park, currently on fire, and the fire department is bivouacked in the otherwise-evacuated neighborhood. Accessible music I’ve been making music to meditate and feel and comfort my body, accessible music using the computer and MIDI. I am getting used to making “muzak” on the computer, and pushing my own boundaries. Houseguest I...
18
Oct. 11, 2017
#18: Artist Statement
Welcome to the What’s The Matter With Me? Podcast, Episode 18 In this episode: Fight/Cook Cycle — Spare rib recipe — Artist Statement An artist statement is hard to write — it requires you to believe in your own importance.
17
Oct. 8, 2017
#17: I’m Proud To Be Disabled
Welcome to What’s The Matter With Me? Podcast,Episode 17 Nurse Practitioners — BBQ — Sunday date blowup — Cognitive wall — Foot Wound — Radio — I’m proud to be disabled
16
Sept. 26, 2017
#16: Electromagnetic sock therapy
Welcome to What’s The Matter With Me? Podcast Episode 16 Lamp destruction – Cognitive Exercises – Best American Sportswriting 2015 – Electromagnetic sock sales – The importance of this podcast
15
Sept. 18, 2017
#15: In the garden
Welcome to What’s the Matter With Me? Podcast Episode 15 I start the episode off with the handicap space for the third episode in row. My garden gives me room to breathe from the grasp of disability — but I supplement with physical therapy and mindfulness practice. I’m teaching my son to watch birds and he made a correct identification. Handicap space Part 3 — Falls — Tomatoes — Gardening — Socks — Disability — Bird ID
14
Sept. 10, 2017
#14: Reunion as a disabled person
Hot Sauce On An Oyster, photo by Brook Lane. What’s the Matter With Me? Podcast Episode 14: Autistic son I read the NY Times Disability column about an autistic son finding purpose. Hot It was hot: 114F! Fell and hit my head I fell hard and cracked my neck on dining room table. 20th High School Reunion I looked for acceptance at my 20th HS reunion.
13
Sept. 1, 2017
#13: Disability in the dog days
I took this picture with my wife at the home of the Japanese Consul General in San Francisco. What’s The Matter With Me? Podcast Episode 13 Figs growing in the garden — Charcot’s Triad — Feedback — 109 Degrees — Friends — Defending the handicap space
12
Aug. 23, 2017
#12: Gruesome fall & BBQ burn
This is a photograph of Hoffee’s Auto Body Shop in San José, California on the last day of business before closing. David Li owned the place and was my family’s mechanic for over 20 years. Episode 12 Figs — Gruesome Fall — Charcot’s Triad — Controlling Emotions — Burn at the BBQ I’ve been falling and hurting myself. I need to slow down and be safe. Hurrying makes accidents. At the same time, I need to control my emotions and manage my MS therapy for the sake of my family and my business.
11
Aug. 9, 2017
#11: Stone in the ocean
Birthday Party — Steak — Cognitive Disability in the Dressing Room — Fish Oil — Garlic Season — The Deaths of Ted and Larry — Stone in the Ocean
10
July 26, 2017
#10 : The Purpose
What’s The Matter With Me? Podcast Episode 10 Purpose — Ep. 9 Recap — John John Sick — Ballgame Fiasco — BBQ — Crying, Pressure — Rose Trimming
9
July 19, 2017
Wedding in Boonville
We left, we went to a beautiful wedding in Boonville. They had an oyster bar and I ate there with a couple friends. That was a really nice activity. The food was wonderful. The wedding was beautiful. One of the brides wore a leather wedding dress made by Valentino. The wedding had caviar on a runcible spoon and a fine Italian wine at the meal. Begin Transcript What’s the Matter With Me? Episode 9, “Wedding In Boonville.” Yeah, it’s What’s the Matter With Me? Episode 9! My name is John. I’m 3...
8
July 5, 2017
#8: Big Week
What’s The Matter With Me? Podcast, Episode 8: “Big Week” My name is John, I’m 38 years old, husband and father of two, radio DJ, podcaster, small business owner and I have MS (Multiple Sc;erosis). I made this podcast to share what I’m going through. Recap Episode 7: “Bread Moment” It was very hot, and now it’s rather pleasant. I’ve been having a peaceful week with my wife because when it’s hot I am grouchy. I also told the story of being afraid of Chad Robertson, my bread hero. I baked bread ...