Episodes

Attending the MS Breakthroughs Conference Over the weekend, I attended the MS Breakthroughs event put on by the National MS Society. The keynote speaker was Jeffrey Dunn, director of the Stanford MS Center. The event promised to inform about the current-day MS Breakthroughs as well as the future of MS Research. It began with a free breakfast. The guy next to me dug in. I’d already eaten. I heard the danishes were good. Award Ceremony Someone who raised $250,00, another raised $100,000 & wrot...

Something Happened at Bill’s Cafe I order coffee and toast, John John gets pancakes. Tap on my shoulder, our host – “Excuse me sir, is that.. your underwear?” Injury in the yard I was working in the yard, fertilizing some yellow cauliflower plants. I stepped in a hole leftover from when we pulled out tomato plants and I fell to my side. It felt like i tweaked it. I was in a wheelchair or bed ridden. I had a lot of work to finish before Christmas. I was on the radio Last Friday, I hosted the...

LIVE From The Petaluma SMART Station My brace helps me to walk, but it doesn’t mean I can go out walking. I learned it the hard way yesterday when I went out in Petaluma. Live broadcast from a bench outside the Petaluma SMART Station. Sorry I’ve been away I’ve been doing events for Hoppin Hot Sauce. BJ Miller I met BJ Miller at a latke party. I have been wanting to meet him in person to this article in the New York Times from January 2017. I got to sit down right next to him and talk, it w...

Welcome to Whats The Matter With Me? Season 2, Episode 15: Misadventures in r/MultipleSclerosis In this episode, I head to the r/MultipleSclerosis subreddit for support, and get mixed results. Is my message insulting or inspiring? It depends on who you ask. My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through. Whats The Matter With Me? is an MS podcast and i...

Welcome Whats The Matter With Me? Season 2, Episode 13: It’s Fall … when they came to get the doctor, right away something was different. It was my first time working with a disabled care provider. It was great. I thought that was great and I told her so. I said, “Hey man, it’s cool what you’re doing. It’s cool to see someone disabled as a care provider. I really like it.” She had a disability you could see right away looking at her. It made her work more complicated, but she had hacks and work...

Welcome Whats The Matter With Me? Season 2, Episode 12: Antacids It was too hard and nobody wanted it anyway, I thought. I went on for some days like this and I think it may have happened the week before as well. I really felt like quitting and giving up everything. And what was so annoying was I couldn’t even have a thought about that, to evaluate it. There were no brain waves. My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have ...

Welcome Whats The Matter With Me? Season 2, Episode 11: Grantwriting I applied for a grant related to this podcast, to help me increase my internet savvy and learn Techniques to spread this message in a louder voice with greater reach. I don’t know about all that but I can tell you it was great to put together an application. I wrote some essays that clarified why I am doing this. My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I hav...

Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 10: Monterey We went to Monterey on vacation. It was frustrating because I felt very limited by disability. I have such a hard time on vacation because I can’t do what I used to. I need to figure out a new way. My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through. Whats The Matter With Me? is...

WTMWM? – S2, E9: Swimming Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 9: Swimming My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis (MS), so I made this podcast to share what I’m going through The Whats The Matter With Me? Podcast is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ...

WTMWM? – S2, E8: The Disability Trap Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 8: The Disability Trap My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis (MS), so I made this podcast to share what I’m going through. The Whats The Matter With Me? Podcast is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If yo...

WTMWM? – S2, E7: Wacky Wednesday Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 7: Wacky Wednesday My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis (MS), so I made this podcast to share what I’m going through The Whats The Matter With Me? Podcast is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need me...

WTMWM? – S2, E6: Awaker Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 6: Awaker My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis (MS), so I made this podcast to share what I’m going through The Whats The Matter With Me? Podcast is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ask ...

WTMWM 35 – S2, E5: Pain is bearable Welcome to Whats The matter with me Season 2, Episode 5: Pain is bearable My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis, so I made this podcast to share what I’m going through What’s the matter with me is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. However, if you need medical advice, ask your healt...

What’s The Matter With Me? Podcast – S2, E4: Bring It On Or Maybe Not Hello and What’s The Matter With Me? Season 2, Episode 4. My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through. What’s The Matter With Me? is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice if you need medical advice ask yo...

What’s The Matter With Me? Podcast – S2, E3: Neuro Psych Eval Hello and Welcome to Whats The matter with me? season 2, episode 3 My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through What’s the matter with me is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your...

What’s The Matter With Me? Podcast – S2, E3: Neuro Psych Eval Hello and Welcome to Whats The matter with me? season 2, episode 3 My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through What’s the matter with me is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your...

What’s The Matter With Me? Podcast – S2, E3: Neuro Psych Eval Hello and Welcome to Whats The matter with me? season 2, episode 3 My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through What’s the matter with me is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your...

Welcome to the What’s The Matter With Me? Podcast, Season 2, Episode 2 “Cafeteria” My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through. What’s The Matter With Me? is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your healthcare provider Download the What’s T...

Recap I made 33 episodes in Season 1 and you can find them on Apple podcasts and whatsthematterwithme.org. I listened to them all and it just sounded like some guy complaining but that’s just my thing I guess so I’m going to go forward. I increased my disability Consciousness throughout Season 1 and I intend to continue in Season 2. Contact Many people contacted me so I want to give shout-outs to some of them – Jose, Bob, Jersey girl, Black Cat, Nat, Peggy, and Brian. Thank you for listening ...

Welcome to the Season Finale Welcome to the What’s The Matter With Me? Podcast, Episode 33: A Scrap Of A Dad Is Still A Dad. It’s the NBD season finale. My name is John, I’m 38 years old, husband, father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through. What’s The Matter With Me? is a MS podcast and it’s also about other things. I am not a medical professional and you should not take this for medical advice. ...

Enter The Dragon In this episode, I tell all about the last scene in Enter the Dragon and how it connects to my experience going to Lollapalooza in 1994, the Wahl’s protocol, and the upcoming Season Finale in Episode 33. Inspired by playing Episode 1 in the last episode, I compare where I am then and now. Episode 31 Recap Last episode, Yoko was here. She in Tokyo now, but things continue to happen to me, so let’s talk about them. I fell out of the shower. I saw my MS doctor and we discussed m...

Doctor Visit In this episode my wife’s mom was visiting, I fall out of the shower, I visit the my doctor at the Stanford multiple sclerosis clinic, and play Episode 1 which is a really validating experience, because many of the themes still resonate. Episode 30 Recap Last episode, I exhibited at the Winter Fancy Food Show which was a big step forward for my business. Fulfillment, sales and following up arer ongoing. Getting it together was a lot of work and I experienced some cognitive slowne...

What’s The Matter With Me? Podcast Episode 30 My name is John, I’m 38 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis. I made this podcast to share what I’m going through. Disabled entrepreneur Episode 30 of the What’s The Matter With Me? podcast revolves around promoting my brand at a trade show as a disabled entrepreneur with MS. It was really fun and a major step forward for my business. Check out the episode for more. Transc...